Publicaties
End-of-life decisions and demented patients. What to do if the patients current and past wishes are in conflict with each other? Universiteit Antwerpen
Schriftelijke euthanasieverklaringen van wilsonbekwame patiënten met dementie Vrije Universiteit Brussel
OBJECTIVE: To present the knowledge, experiences and attitudes of the general population, patients, relatives and health care professionals concerning written advance euthanasia directives in patients who have become mentally incompetent.
DESIGN: Systematic review of the literature.
METHOD: We systematically searched Medline, Cochrane Library and Embase for articles published in the period 2002-2016.
RESULTS: The search ...
Advance Care Planning in young-onset dementia Vrije Universiteit Brussel
Advance care planning (ACP) is considered as an essential element of high quality and ethically sound long-term care after a diagnosis of dementia. ACP is a process of communication between patients, family caregivers and professional caregivers in which the patient's preferences regarding (future) care are explored, including end-of-life care. The overarching goal of ACP is to increase the chance that individuals will ...
Advance care planning in amyotrophic lateral sclerosis and other chronic life-limiting conditions Vrije Universiteit Brussel
People live longer primarily because of improved public health, medical knowledge, and technology. This resulted in a growing population of older people and a fundamental change in the main cause of death, i.e. due to chronic life-limiting illnesses. Chronic-life-limiting illnesses are characterized by prolonged disease trajectories, with a functional decline over months or years and are responsible for more than 73% of the ...
Nurses' perspectives on whether medical aid in dying should be accessible to incompetent patients with dementia Vrije Universiteit Brussel Universiteit Gent
We conducted a survey in a random sample of 514 Quebec nurses caring for the elderly to assess their attitudes towards extending medical aid in dying to incompetent patients and to explore associated factors. Attitudes were measured using clinical vignettes featuring a hypothetical patient with Alzheimer disease. Vignettes varied according to the stage of the disease (advanced or terminal) and the presence or absence of a written request. Of ...
Are Informal Caregivers of Persons With Dementia Open to Extending Medical Aid in Dying to Incompetent Patients? Vrije Universiteit Brussel Universiteit Gent
Euthanasia is a controversial and complex issue, especially when involving incompetent patients. On December 10, 2015, Quebec became the first Canadian province to give access to medical aid in dying (MAiD) (ie, euthanasia performed by a physician) to competent patients who satisfy strictly defined criteria. Less than 2 years later, Quebec is considering extending MAiD to incompetent patients who made an advance request. With the objective of ...
Dementia, end of life, and euthanasia Universiteit Antwerpen Universiteit Gent Vrije Universiteit Brussel
EEG-based biomarkers in deep brain stimulation for Parkinson’s disease KU Leuven
End-of-life treatment decisions in nursing home residents dying with dementia in the Netherlands Vrije Universiteit Brussel Universiteit Gent
OBJECTIVE: The objective was to describe end-of-life treatment decisions for patients dying with dementia in various stages of dementia in long-term care facilities in the Netherlands with elderly care physicians responsible for treatment and care.
METHODS: We present data collected in the nationally representative Dutch End of Life in Dementia study (2007-2011). Within 2 weeks after death, 103 physicians completed questionnaires ...