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How robust is ACTIVLIM for the follow-up of activity limitations in patients with neuromuscular diseases? KU Leuven Universiteit Gent Vrije Universiteit Brussel
This study aims to investigate the clinimetric properties of ACTIVLIM, a measure of activity limitations, when it is used in daily practice in a large nationwide representative cohort of patients with neuromuscular diseases. A cohort of 2986 patients was assessed at least once over 2 years in 6 national neuromuscular diseases reference centers. Successive Rasch analyses were conducted in order to investigate the scale validity, reliability, ...
Activity limitations in patients with neuromuscular disorders: a responsiveness study of the ACTIVLIM questionnaire KU Leuven
Recently, a self-reported scale of activity limitations, the ACTIVLIM questionnaire, was developed and validated in patients with neuromuscular disorders (NMD). The purpose of this study was to investigate its sensitivity to change. One hundred thirty-two patients with NMD (mean age, range: 31, 6-80) were assessed twice, with 21+/-4 months in between, using the ACTIVLIM questionnaire. Mean score change, effect size, standardized response, mean ...
Patterning of mouse embryonic stem cell-derived pan-mesoderm by Activin A/Nodal and Bmp4 signaling requires fibroblast growth factor activity Vrije Universiteit Brussel
Embryonic stem (ES) cells have the potential to differentiate into all cell types of the adult body, and could allow regeneration of damaged tissues. The challenge is to alter differentiation toward functional cell types or tissues by directing ES cells to a specific fate. Efforts have been made to understand the molecular mechanisms that are required for the formation of the different germ layers and tissues from ES cells, and these mechanisms ...
Indymedia in Belgium: the delicate balance between media activism and political activism Universiteit Antwerpen
Belgium was one of the first European countries to establish a local ‘national’ branch of the global Indymedia network. The diversity of those involved in this ‘national movement’ ultimately turned out to be both the strength of the original website and the cause of its decline. Indeed, due to political and organizational disagreement, many activists decided to create their own ‘local’ Independent Media Centre (IMC). This article distinguishes ...
Designing and validating the Digital Activism Scale (DAS) : an instrument to measure online activism on social media Universiteit Gent
Claiming Cape Town : towards a symbolic interpretation of Khoisan activism and land claims Universiteit Gent
Current political negotiations in South Africa which explore the possibility of pre-1913 land claims and the recognition of Khoisan traditional authorities have spurred the growth of the “Khoisan revival”: the phenomenon of people identifying as Khoisan and asserting indigenous rights. Based on fieldwork conducted in Cape Town in 2014 and 2015, this paper discusses the motivations and strategies of several Khoisan activists. After outlining the ...
Intersectional Mobilization and the EU: Which Political Opportunities are there for Romani Women’s Activism? Vrije Universiteit Brussel
Inspired by existing literature on the Europeanization of social movements, this study asks whether, and to what extent, the political opportunity structures (POS) for collective action created by the European Union contribute to intersectional mobilization. In particular, it investigates whether the EU integration process determines (political) advantages for domestic (intersectional) political actors, or rather facilitates their ...
Navigating Multiple Identities: The Simultaneous Influence of Advantaged and Disadvantaged Identities on Politicization and Activism KU Leuven
Most identity-based models of activism assume that action is motivated either by a disadvantaged identity (predicting own-group activism), or a feeling of solidarity with disadvantaged groups (predicting ally activism). They do not account for advantaged and disadvantaged identifications within the same person. Yet many activists have both advantaged and disadvantaged identities. Two interview studies from Hungary and the United States (N = 47) ...