Onderzoeker
Mahsa Shabani
- Disciplines:Evolutie biologie, Algemene biologie, Sociaal-medische wetenschappen, Theorie en methodologie in de filosofie, Filosofie, Ethiek, Andere filosofie, ethiek en religiestudies niet elders geclassificeerd
Affiliaties
- Interfacultair Centrum voor Biomedische Ethiek en Recht (Onderzoeksinstituut)
Lid
Vanaf1 sep 2011 → 31 dec 2019
Projecten
1 - 1 of 1 results
- Ontdekking, analyse en uitwisseling van genomische data door netwerken van databanken: ethische en juridische uitdagingenVanaf1 okt 2017 → 1 jan 2020Financiering: FWO mandaten
Publicaties
1 - 10 of 33 results
- DNA Data Marketplace: An Analysis of the Ethical Concerns Regarding the Participation of the Individuals(2019)Tijdschrift: Frontiers in GeneticsVolume: 10
Auteurs: Eman Ahmed, Mahsa Shabani
Aantal pagina's: 6 - Model consent clauses for rare disease research(2019)Tijdschrift: BMC Medical EthicsIssue: 1Volume: 20
Auteurs: Thu Nguyen Minh, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Hechtelt Jonker, Petra Kautmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani, Eric Sid, et al.
Aantal pagina's: 7 - Transparency and objectivity in governance of clinical trials data sharing: Current practices and approaches(2019)Tijdschrift: Clinical Trials : Journal of the Society for Clinical TrialsISSN: 1740-7745Issue: 5Volume: 16
Auteurs: Mahsa Shabani, Mojisola Obasa
Pagina's: 547 - 551Aantal pagina's: 5 - The Use of Samples Originating From Doping Control Procedures for Research Purposes: A Qualitative Study(2019)Tijdschrift: Journal of Empirical Research on Human Research EthicsISSN: 1556-2646Issue: 3Volume: 14
Auteurs: Thijs Devriendt, Amicia Phillips, Mahsa Shabani, Pascal Borry
Pagina's: 254 - 261Aantal pagina's: 8 - Re‐identifiability of genomic data and the GDPRAssessing the re‐identifiability of genomic data in light of the EU General Data Protection Regulation(2019)Tijdschrift: EMBO ReportsISSN: 1469-221XIssue: 6Volume: 20
Auteurs: Mahsa Shabani, Luca Marelli
Aantal pagina's: 5 - Consent insufficient for data release(2019)Tijdschrift: ScienceISSN: 0036-8075Issue: 6439Volume: 364
Auteurs: Dianne Nicol, Lisa Eckstein, Heidi Beate Bentzen, Pascal Borry, Mike Burgess, Wylie Burke, Don Chalmers, Mildred Cho, Edward Dove, Stephanie Fullerton, et al.
Pagina's: 445 - 446Aantal pagina's: 2 - Variant data sharing by clinical laboratories through publicdatabases: consent, privacy and further contact for researchpolicies(2019)Tijdschrift: Genetics in Medicine : Official Journal of the American College of Medical GeneticsISSN: 1098-3600Issue: 5Volume: 21
Auteurs: Mahsa Shabani, Stephanie Dyke, Luca Marelli, Pascal Borry
Pagina's: 1 - 7Aantal pagina's: 7 - Are Requirements to Deposit Data in Research Repositories Compatible With the European Union's General Data Protection Regulation?(2019)Tijdschrift: Annals of Internal MedicineISSN: 0003-4819Issue: 5Volume: 170
Auteurs: Deborah Mascalzoni, Heidi Beate Bentzen, Isabelle Budin-Ljosne, Lee Andrew Bygrave, Jessica Bell, Edward S Dove, Christian Fuchsberger, Kristian Hveem, Michaela Th Mayrhofer, Viviana Meraviglia, et al.
Pagina's: 332 - +Aantal pagina's: 4 - Blockchain-based platforms for genomic data sharing: a de-centralized approach in response to the governance problems?(2019)Tijdschrift: Journal of the American Medical Informatics AssociationISSN: 1067-5027Issue: 1Volume: 26
Auteurs: Mahsa Shabani
Pagina's: 76 - 80Aantal pagina's: 5 - Umbilical Cord Blood Banking, Research and Clinical Applications. Report and recommendations(2018)Boek: Governing Stem cells Regenerative medicine in Europe. The vision and recommendations from the EUCelLEX project
Auteurs: Rosario Isasi, Bartha Maria Knoppers, Pascal Borry, Mahsa Shabani, Herman Nys, Emmanuelle Rial-Sebbag
Pagina's: 60 - 75