Projects
The questionnaire about the experiences with and expectations of parents with children with specific care needs regarding formal childcare Ghent University
Breaking the silence. On the cultural, formal and social integration of the hearing impaired. The case of East-Flanders, 1750-1900. Ghent University
According to (inter)national literature, disabled people were well integrated within their communities until the mid-19th century, when as a result of the industrial revolution and medicalization process, they became an oppressed group. This research project intends to subject this hypothesis to an empirical inquiry and aims to gain more insight into the social position of deaf people, in East-Flanders (1750-1900).
Informal caregivers caring for a frail older person living at home: coping with acute and gradual changes in health and dependency. University of Antwerp
A time to care and to be cared for: the wellbeing of childbearing women and the organization of maternity care in a cross-national perspective Ghent University
In the post-doc phase of this research two goals are pursued: 1) the impact of the tension between the organisation of formal and informal care and work, for the wellbeing of mothers and fathers will be addressed. 2) The cross-national comparison of Flanders and the Netherlands will be extended with other countries in the preparation for a new data collection. The sociological background for the study of these matters is multi-fold: ...
What are the unmet care and support needs of children living with a parent diagnosed with advanced cancer: a mixed methods study using qualitative interviews, a quantitative survey and big data Vrije Universiteit Brussel
have young children. The last couple of years, attention for the
quality of the care for these patients is clearly increasing. A positive
tendency that, more recently, also applies to their caregivers. As of
late, there is a growing awareness that due to the increasing group of
people with problems, support outside of the professional
...
What are the unmet care and support needs of children living with a parent diagnosed with advanced cancer: a mixed methods study using qualitative interviews, a quantitative survey and big data Ghent University
A significant part of the people diagnosed with incurable cancer, have young children. The last couple of years, attention for the quality of the care for these patients is clearly increasing. A positive tendency that, more recently, also applies to their caregivers. As of late, there is a growing awareness that due to the increasing group of people with problems, support outside of the professional environment is needed. The wider social ...
Researching a fundamental methodology, KPIs and guidelines for integration of innovative ICT services in the care and welfare sector Ghent University
Our environment is becoming U+2018smarterU+2019 Many objects, products and services both for personal and non-personal use are being taken to a next level due to the integration of ICT-functionalities. This allows these products and services to collect information of the context they are used in, and to communicate, adapt and act on this information. These ICT-enabled smart services have been contributing to the migration of many ...
I am so tired of existing: Clarifying the complex and multilayered experience of 'tiredness of life' (ToL) from a care ethical and pharmacotherapeutic perspective KU Leuven
A phenomenon that receives increasing interest in society is that of older adults who experience their life as completed and of no value anymore. This phenomenon is labeled ‘tiredness of life’ (ToL) but very little empirical knowledge of what ToL is, seems currently available and no insight is present for nursing home residents (NHRs), a growing population in western societies. Therefore the interdisciplinary project ClarEToL aims to provide ...
Rethinking IPF care: charting the course to person-centred integrated care for idiopathic pulmonary fibrosis together with patients and healthcare professionals KU Leuven
Idiopathic pulmonary fibrosis (IPF) is a rare lung disease that has a crude impact on a person's ability to breathe freely due to the progressive accumulation of scar tissue which destructs lung tissue. As a result, patients face debilitating symptoms such as breathlessness and fatigue, and are given a poor prognosis of two to five years after diagnosis if left untreated. Fortunately, there are two anti-fibrotic drugs available that ...