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Reviewing the evidence on nodding syndrome, a mysterious tropical disorder Instituut voor Tropische Geneeskunde
Objectives: To review the literature on the prevalence, clinical manifestations, pathogenesis, treatment, and implications of nodding syndrome (NS).
Methods: This is a narrative review.
Results: NS is a mysterious tropical disorder that is emerging in South Sudan, southern Tanzania, and northern Uganda. Over the past decade, thousands of children have become affected, but the prevalence is unknown. NS is characterized by an ...
The rise and fall of nodding syndrome in public discourse: an analysis of newspaper coverage in Uganda Universiteit Gent
Nodding syndrome is an unexplained affliction that has affected thousands of children in post-conflict northern Uganda, South Sudan and in Tanzania. This study focuses on the sudden rise of nodding syndrome in the Ugandan public discourse, based on 369 newspaper reports over a timespan of 4.5 years and interviews with journalists, politicians, caretakers and health workers during 15 months of fieldwork in Kitgum district. The news coverage of ...
Nodding syndrome and epilepsy in onchocerciasis endemic regions Instituut voor Tropische Geneeskunde Universiteit Antwerpen
BACKGROUND: Nodding syndrome (NS) is an epilepsy disorder occurring in children in South Sudan, northern Uganda and Tanzania. The etiology of NS is unknown, but epidemiological studies demonstrate an association between NS and onchocerciasis. METHODS: Between November 2013 and July 2015 we visited onchocerciasis endemic regions in South Sudan, Uganda, and the Democratic Republic of the Congo (DRC) to assess the epilepsy situation. In South Sudan ...
The quest for treatment: the violated body of nodding syndrome in Northern Uganda Universiteit Gent
Nodding syndrome is an unexplained affliction that affects thousands of children in northern Uganda. It is characterised by episodes of repetitive dropping forward of the head and often accompanied by convulsions. Symptoms were first reported in Uganda around 1998, during two decades of violent conflict between the Lord’s Resistance Army and Ugandan government. Violence and politics have been assimilated into local narratives on nodding syndrome ...
Nodding syndrome since 2012 Instituut voor Tropische Geneeskunde Universiteit Antwerpen
We aim to review the current epidemiology of nodding syndrome (NS) and discuss relevant gaps in research. NS and convulsive epilepsy of unknown aetiology are clustered within the same villages and families in onchocerciasis endemic areas. They are therefore potentially different clinical expressions of the same disease. It has been difficult to perform full autopsies on NS patients who die in remote villages. Adequate fixation of tissue ...