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Sharing is caring. Sharing and documenting complex participatory projects to enable generative participation KU Leuven
This article reflects on how sharing documentation of subjective viewpoints on complex participatory projects can contribute to end-user development in or generativity ofprojects. We will discuss the documentation approaches of some participatory projects that combine the development of software and hardware in a cultural, social or health context with groups of participants with an eye on generating ongoing participation. We will also describe ...
Sharing is caring. Sharing and documenting complex participatory projects to enable generative participation Universiteit Hasselt
This article describes how sharing documentation of complex participatory projects can contribute to end-user development. With complex participatory projects we refer to projects combining the development of software and hardware in a cultural, social or health context with groups of participants. In this paper we specifically analysed projects that share documentation with an eye on end-user development, which we will refer to as generativity. ...
Meeting need vs. sharing the market: a systematic review of methods to measure the use of private sector family planning and childbirth services in sub-Saharan Africa Instituut voor Tropische Geneeskunde
BACKGROUND: Ensuring universal access to maternal and reproductive health services is critical to the success of global efforts to reduce poverty and inequality. Engaging private providers has been proposed as a strategy for increasing access to healthcare in low- and middle-income countries; however, little consensus exists on how to estimate the extent of private sector use. Using research from sub-Saharan Africa, this study systematically ...
Structural under-reporting of informed consent, data handling and sharing, ethical approval, and application of Open Science principles as proxies for study quality conduct in COVID-19 research: a systematic scoping review KU Leuven
BACKGROUND: The COVID-19 pandemic required science to provide answers rapidly to combat the outbreak. Hence, the reproducibility and quality of conducting research may have been threatened, particularly regarding privacy and data protection, in varying ways around the globe. The objective was to investigate aspects of reporting informed consent and data handling as proxies for study quality conduct. METHODS: A systematic scoping review was ...
Genomic data as a national strategic resource : implications for the genomic commons and international data sharing for biomedical research and innovation Universiteit Gent
This article provides a critical review of new policies in China, the United States, and the European Union that characterize genomic data as a national strategic resource. Specifically, we review policies that regulate human genomic data for economic, national security, or other strategic purposes rather than ethical or individual rights purposes.
Is policy shaping the market, or is the market shaping policy? Evaluation of policy measures on the fixed and mobile broadband market Universiteit Gent
Sharing is caring : prominent issues and considerations regarding the equitable distribution of deep sea mining proceeds Universiteit Gent
Sharing is caring? Barcoding suggests co-introduction of dactylogyrid monogeneans with Nile tilapia and transfer towards native tilapias in sub-Saharan Africa Universiteit Hasselt Universiteit Antwerpen KU Leuven
Invasive Nile tilapias negatively impact native tilapia species through hybridisation and competition. However, the co-introduction of parasites with Nile tilapia, and subsequent changes in parasite communities, are scarcely documented. Monogeneans are known pathogens of cultured Nile tilapia, although little is known about their fate once Nile tilapias establish in new ecosystems. We investigate the parasitological consequences of Nile tilapia ...
Updated Results of the COVID-19 in MS Global Data Sharing Initiative Anti-CD20 and Other Risk Factors Associated With COVID-19 Severity KU Leuven Universiteit Hasselt
BACKGROUND AND OBJECTIVES: Certain demographic and clinical characteristics, including the use of some disease-modifying therapies (DMTs), are associated with severe acute respiratory syndrome coronavirus 2 infection severity in people with multiple sclerosis (MS). Comprehensive exploration of these relationships in large international samples is needed. METHODS: Clinician-reported demographic/clinical data from 27 countries were aggregated into ...