Shaping the future and living in the present: Living a ‘good’ life with a familial heart disease KU Leuven
© 2015 Macmillan Publishers Ltd. In genetic counselling practices, individuals are explicitly encouraged to take an active stance towards their future. The premise is that, by considering their genetic risks and taking preventive measures, they have some control over their future life and health. However, it is unclear how families engaged in genetic testing actually deal with the promises of genetic test results, and how they perceive their ...