NEED for rare conditions. Identification of unmet patient and societal needs in healthcare - Applicability of a framework to rare diseases KU Leuven
Measuring unmet health-related needs is not easy - even for common diseases - because the concept and criteria for determining unmet needs are not defined in the same way everywhere. Unmet needs may be related to limitations in access to health care, lack of awareness of needs, patient preferences (not to seek or use health care), and suboptimal health care due to lack of effective treatment or care.
The following research questions ...