Projects

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An integrative study of personal and illness identity in chronic illness: Adaptation, social roles, and health care use. KU Leuven

Koen Luyckx
School Psychology and Development in Context, Academic Centre for Nursing and Midwifery
De levensverwachting voor de meeste chronische ziektes is toegenomen; meer dan 90% van de getroffen kinderen overleven tot in de volwassenheid. Naast de impact die chronische ziekte heeft op het individu en zijn of haar context, heeft het ook een enorme impact op de gezondheidszorg en maatschappij. Dit project onderzoekt hoe chronische ziekte deze verschillende niveaus beïnvloedt door een integratief perspectief te hanteren op persoonlijke en ...

Magenta@Brussel: Magenta is translating its existing offer for parents with a special need due to a limitation or a chronic illness between 0 and 14 years to the Brussels context KU Leuven

Bea Maes
Parenting and Special Education

Magenta is translating its existing offer for parents of children with a special need due to a limitation or a chronic illness between 0 and 14 years to the Brussels context. Magenta develops supporting tools for this together with the parents from Brussels and from the user's perspective.

Management Manual for parents of a child with a disability or chronic illness. KU Leuven

Bea Maes
Parenting and Special Education
A child with a disability or a chronic illness has a serious impact on family life: intensive care is needed, for a long period. The importance of well-functioning families and good Family Quality of Life (FQOL) is recognized. The Magentaproject is a program for parents of children between 0 and 14 years old. The focus is on a good balance between Care, Work and Life. During workshops with parents managerial practices are adapted to the family ...

Illness-related challenges in young individuals with a health condition: A longitudinal investigation of illness identity, the body, and psychological functioning KU Leuven

Koen Luyckx
School Psychology and Development in Context, Academic Centre for Nursing and Midwifery

Up to 20% of Western adolescents have a chronic illness. Chronic illness has been described as a defining and transformational life experience, and many youth struggle with reconciling the illness with who they are as a person. Research has demonstrated that youth with a chronic illness can experience decreased well-being as compared to their agemates, such as increased depressive symptoms and lowered quality of life. ...

SRP-Onderzoekszwaartepunt: Addressing the challenges around serious illness, palliative care and the end of life: public health, health services and clinical innovations Vrije Universiteit Brussel

Joachim Cohen
Family Medicine and Chronic Care
What: This Strategic Research Program (SRP) addresses challenges around serious illness care, palliative care (PC) and the end of life through stringent research. Why: Over the past decades, serious illness care and palliative care have received increasing attention from researchers and policy makers. However, the challenges remain substantial. Some numbers illustrate this. In a country like Belgium (11 million inhabitants) it is estimated that ...

HIV Illness Identity, Household HIV Competence and Antiretroviral Treatment Adherence, an analysis of associations among a treatment-naïve adult population living with HIV in the Western Cape, South Africa. University of Antwerp

Edwin Wouters
Centre for Population, Family and Health
The HIV/AIDS epidemic is still severely impacting South Africa: in 2021, approximately 1 out of 5 adult South Africans was HIV positive. As a response, the South African government has rolled out life-saving antiretroviral treatment (ART) in the public health sector, with approximately 5.5 million people currently receiving ART. ART has been proven to be highly effective: when achieving 95% adherence, HIV is transitioned from a terminal illness ...

Uraemic toxins in children with chronic kidney disease. Ghent University

Ann Raes
Department of Internal Medicine and Pediatrics

By a multicenter longitudinal follow-up study, the role of uremic toxins (UT) in the pathogenesis and pathophysiology of chronic kidney disease in children is explored by determining the accumulation pattern of different UT in various renal pathologies and correlating these with comorbidities such as
growth and sleep quality, with CKD progression and the gut microbiome profile.

QAPICHE: QuAlity of life in Patients wIth CHronic diseasE Ghent University

Delphine De Smedt
Department of Public Health and Primary Care, Department of Public health

Chronic disease is associated with a substantial burden both for the patient and their environment. The QAPICHE study provides a profound insight into the Health-related quality of life (HRQoL) of chronically ill patients, by comparing patient groups and investigating the determinants, accounting
for multimorbidity and socioeconomic status. Furthermore, the interrelation between patients’ HRQoL and informal caregivers’ HRQoL is ...

Chronic care Ghent University

Sofie Verhaeghe
Department of Public health

This research collaboration aims to support and harmonize multidisciplinary care for elderly and people with a chronic illness. In a first phase, the research group focused on the development of a digitalized knowledge database regarding chronic wound care and on the development of an intervention to improve adherence in patients with a venous leg ulcer.