Projects
Longitudinal study on the influence of family resources and family patterns of interaction on the development of children with profound intellectual and multiple disabilities KU Leuven
Due to the complex interplay of their limitations, young children with a significant cognitive and motor developmental delay are highly dependent on their immediate social setting. Parents and professionals are confronted with unique challenges in the children’s upbringing and support, while research on this specific target group is very scarce. Based on the ‘Developmental Systems Approach’ of Guralnick (2011), this PhD project aims to ...
Euthanasia requests from psychiatric patients in Flanders: motives, experiences, management and outcomes Vrije Universiteit Brussel
End-of-life decisions in fetuses older than 22 weeks, neonates and infants: a population based study in Flanders, Belgium Vrije Universiteit Brussel
Developing and evaluating innovative interventions to improve Advance Care Planning (ACP): towards a comprehensive multistakeholder model Vrije Universiteit Brussel
between patients, family carers and professionals about preferences
for future end-of-life care. The goal of ACP is to help to ensure that
patients receive care that is consistent with their preferences,
including at times when patients are no longer able to make their own
decisions about care. Despite its importance, the uptake of ACP in
...
End-of-life trajectories of older people with serious chronic illness: a mixed-methods feasibility study Vrije Universiteit Brussel
A perinatal palliative care program within standard perinatal healthcare: developing and pilot testing a complex intervention (a phase 0-2 study) Vrije Universiteit Brussel
PAVE Producing an Arthritis Value-Framework with Economic Evidence – Paving the Way for Rare Childhood Diseases KU Leuven
Arthritis in children and youth is a group of rare and ultra-rare diseases. Children of all ages suffer from joint pain, stiffness and swelling slowly destroying they joints and resulting in life-long disability. Pain, decreased mobility and severe fatigue dramatically impact the child’s everyday quality of life and the life of the entire family. The burden of arthritis is far larger than medication costs. Children suffer – miss school days, ...
Uncovering the daily experiences of people with advanced cancer: adaptation and feasibility of the experience sampling method Vrije Universiteit Brussel
Towards timely integration of specialist palliative home care services for older people with dementia with complex care needs and their family carers: a mixed-method theory-informed study Vrije Universiteit Brussel
unmet complex care needs, and are often cared for by their family.
These people could benefit from receiving specialist palliative home
care services. Yet, their access to these services remains poor and
late, and this problem remains understudied. Hence, our overarching
aim is to provide the first comprehensive understanding of how
...