Publications
Service User and Family Carer Involvement in Mental Health Care: Divergent Views KU Leuven
Carer preparedness improved by providing a supportive educational intervention for carers of patients with high-grade glioma Vrije Universiteit Brussel
BACKGROUND: High-grade glioma (HGG) is a rapidly progressing and debilitating disease. Family carers take on multiple responsibilities and experience high levels of distress. We aimed to deliver a nurse-led intervention (Care-IS) to carers to improve their preparedness to care and reduce distress.
METHODS: We conducted a randomised controlled trial (ACTRN:12612001147875). Carers of HGG patients were recruited during patients' combined ...
Family carer support in home and hospital : a cross-sectional survey of specialised palliative care Ghent University KU Leuven Vrije Universiteit Brussel
Advance care planning-family carer psychological distress and involvement in decision making Vrije Universiteit Brussel
OBJECTIVES: Facilitated advance care planning (ACP) helps family carers' to be aware of patient preferences. It can improve family carers' involvement in decision making and their overall experiences at the end of life, as well as, reduce psychological stress. We investigated the effects of the ACTION Respecting Choices (RC) ACP intervention on the family carers' involvement in decision making in the last 3 months of the patients' life and on ...
Implementing elements of a context-adapted chronic care model to improve diabetes care: effects on assessment of chronic illness care and glycaemic control among people with diabetes enrolled to the First Line Diabetes Care (FiLDCare) Project in the North Vrije Universiteit Brussel
Family carers' experiences regarding patient transfers between care settings in palliative care Vrije Universiteit Brussel Ghent University
BACKGROUND: To understand how family carers experienced the illness trajectory of their next of kin related to transfers taken place between care settings in palliative care, their experiences and attitude regarding the transfer decision and their experiences regarding patient transfers across settings.
METHODS: Semi-structured interviews were held with 21 family carers. A constant comparative approach was used to analyze data.
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