Publications

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Volunteers in palliative care: A healthcare system-wide cross-sectional survey. Vrije Universiteit Brussel

Steven Vanderstichelen, Joachim Cohen, Yanna Van Wesemael, Luc Deliens, Kenneth Chambaere
Objective Volunteers are an important resource in bridging palliative care (PC) services and communities. However, no studies have systematically mapped volunteers’ actual contributions to PC provision and how well they are supported by healthcare services at the volunteer level. Such insights are important to shape and optimise supportive environments for volunteering in PC. This study aimed to describe organised volunteering practices in PC ...

Physicians' Experiences and Perceptions of Environmental Factors Affecting Their Practices of Continuous Deep Sedation until Death Vrije Universiteit Brussel

Stijn Vissers, Sigrid Dierickx, Lenzo Robijn, Joachim Cohen, Luc Deliens, Freddy Mortier, Kenneth Chambaere

As previous research has paid little attention to environmental factors affecting the practice of continuous deep sedation until death (CDS), we aimed to explore these using physicians' experiences and perceptions. We performed an interpretative thematic analysis of primary data from a qualitative interview study conducted from February to May 2019 in Belgium with 47 physicians. Structural factors were identified: the lack of professional ...

Civic engagement in serious illness, death, and loss Vrije Universiteit Brussel

Louise D'Eer, Bert Quintiens, Lieve Van den Block, Sarah Dury, Luc Deliens, Kenneth Chambaere, Tinne Smets, Joachim Cohen

BACKGROUND: New public health approaches to palliative care such as compassionate communities aim to increase capacity in serious illness, death, and loss by involving civic society. Civic engagement has been described in many domains of health; a description of the characteristics, processes, and impact of the initiatives in palliative care is lacking.

AIM: To systematically describe and compare civic engagement initiatives in ...

Barriers and facilitators for parents in end-of-life decision-making for neonates at the Neonatal Intensive Care Unit Vrije Universiteit Brussel

Veerle E. Piette, Laure Dombrecht, Luc Deliens, Filip Cools, Kenneth Chambaere, Linde Goossens, No name available, Sabine Laroche, Luc Cornette, Eline Bekaert, et al.

BACKGROUND: Mortality and end-of-life decision-making can occur in newborns, especially within the Neonatal Intensive Care Unit. For parents, participating in end-of-life decision-making is taxing. Knowledge is lacking on what support is helpful to parents during decision-making.

AIM: To identify barriers and facilitators experienced by parents in making an end-of-life decision for their infant.

DESIGN: Qualitative study using ...

Area-Based Compassionate Communities: A systematic integrative review of existing initiatives worldwide Vrije Universiteit Brussel Ghent University

Bert Quintiens, Louise D'Eer, Luc Deliens, Lieve Van den Block, Kenneth Chambaere, Liesbeth De Donder, Joachim Cohen, Tinne Smets
Background: Area-Based Compassionate Communities are community public health interventions which focus on the role of the community in palliative care provision. They apply a set of actions based on the Ottawa Charter for Health Promotion which aims to increase people's control over their health.

Aim: To review and compare Area-Based Compassionate Communities with respect to their contextual characteristics, development processes and ...

Concrete Experiences and Support Needs Regarding the Euthanasia Practice in Adults With Psychiatric Conditions Vrije Universiteit Brussel Ghent University KU Leuven

Monica Verhofstadt, Kurt Audenaert, Freddy Mortier, Luc Deliens, Axel Liégeois, Koen Pardon, Kenneth Chambaere

Objective: Although euthanasia in the context of adult psychiatry is legalized in Belgium, it poses major ethical and clinical challenges for the health care professionals and volunteers involved. This study aimed to address these members' concrete experiences and support needs.

Methods: A qualitative semi-structured interview study was conducted with 16 physicians and 14 other health care professionals and volunteers, with at least one ...

Medical end-of-life decision-making in a small resource-poor Caribbean country Vrije Universiteit Brussel

Nicholas Jennings, Kenneth Chambaere, Cheryl C Macpherson, Karen L Cox, Luc Deliens, Joachim Cohen

BACKGROUND: In resource-poor countries, including in Latin American and the Caribbean, empirical information about the characteristics and incidence of medical end-of-life decisions (MELDs)-withholding or withdrawing potentially life-prolonging medical treatments-is largely absent.

METHODS: The aim was to describe the incidence and decision-making characteristics of MELDs taken prior to the death of people who died at home in Trinidad ...

Why adults with psychiatric conditions request euthanasia Vrije Universiteit Brussel Ghent University KU Leuven

Monica Verhofstadt, Koen Pardon, Kurt Audenaert, Luc Deliens, Freddy Mortier, Axel Liégeois, Kenneth Chambaere

OBJECTIVE: As the empirical picture of adults with psychiatric conditions (further referred to as 'patients') requesting euthanasia is still incomplete, this study aims to deepen our understanding of why these patients request euthanasia, how this relates to the option of suicide, and what could have prevented these patients from considering death and requesting euthanasia.

METHODS: A qualitative study using in-depth, face-to-face ...

Navigating medical assistance in dying from Bill C-14 to Bill C-7 Vrije Universiteit Brussel Ghent University

Barbara Pesut, Sally Thorne, David Kenneth Wright, Catharine Schiller, Madison Huggins, Gloria Puurveen, Kenneth Chambaere

BACKGROUND: Even as healthcare providers and systems were settling into the processes required for Medical Assistance in Dying (MAID) under Bill C-14, new legislation was introduced (Bill C-7) that extended assisted death to persons whose natural death is not reasonably foreseeable. The purpose of this paper is to describe the experiences of nurses and nurse practitioners with the implementation and ongoing development of this ...