Publications
Effect of the care programme for the last days of life (CAREFuL) on satisfaction with care as perceived by family caregivers and geriatric nurses : a qualitative implementation study Ghent University Vrije Universiteit Brussel
Background The CAREFuL programme based on the Liverpool Care Pathway showed improvements in end-of-life care for patients dying in acute geriatric hospital wards. Importantly, it did not show positive effects on families' satisfaction with care. Objectives To gain insight into reasons for absent improved families' satisfaction with care to make adaptations to CAREFuL. Methods We planned a two-step implementation, this study reports the first ...
Recruitment and retention challenges and strategies in randomized controlled trials of psychosocial interventions for children with cancer and their parents : a collective case study Ghent University Vrije Universiteit Brussel
In pediatric oncology there are few examples of successful recruitment and retention strategies in psychosocial care research. This study aims to summarize experiences, challenges, and strategies for conducting randomized controlled trials (RCTs) of psychosocial intervention studies among children with cancer and their parent(s). We conducted a collective case study. To identify the cases, Pubmed and two trial registries were searched for ...
Wat zijn de ervaringen van personen met amyotrofische laterale sclerose (ALS) en hun mantelzorgers met vroegtijdige zorgplanning? Ghent University
Threat through the screen? Association between proximity and/or watching media coverage of a terrorist attack and health Ghent University Vrije Universiteit Brussel
People with young-onset dementia and their family caregivers discussing euthanasia : a qualitative analysis of their considerations Ghent University Vrije Universiteit Brussel
Objectives: Research showed that people with young-onset dementia and their family caregivers raised the topic of euthanasia when talking about the broader topic of advance care planning. A better understanding of what people address and why may inform the evolving landscape of physician assisted dying. This study aimed to explore the considerations that people with young-onset dementia and their family caregivers expressed on euthanasia. ...
Characteristics and outcomes of peer consultations for assisted dying request assessments : cross-sectional survey study among attending physicians Ghent University Vrije Universiteit Brussel
BackgroundIn most jurisdictions where assisted dying practices are legal, attending physicians must consult another practitioner to assess the patient's eligibility. Consequently, in some jurisdictions, they can rely on the expertise of trained assisted dying consultants (trained consultants). However, these peer consultations remain under-researched. We examined the characteristics and outcomes of peer consultations to assess an assisted dying ...
Population-level analysis of appropriateness of end-of-life care for children with neurological conditions Ghent University Vrije Universiteit Brussel
Objective The objective of this study was to measure the appropriateness of end-of-life care for children who died with neurologic conditions. Study design Based on linked routinely collected databases, we conducted a population-level decedent retrospective cohort study of children with neurologic conditions who died in Belgium between 2010 and 2017. We measured a set of 22 face-validated quality indicators. The set concerns 12 indicators of ...