Researcher
Mahsa Shabani
- Keywords (Ghent University):Privacy, bioethics, data protection law
- Disciplines (Ghent University):Information law, Bioethics
- Disciplines (KU Leuven):Evolutionary biology, General biology, Social medical sciences, Theory and methodology of philosophy, Philosophy, Ethics, Other philosophy, ethics and religious studies not elsewhere classified
- See also: Mahsa Shabani (KU Leuven)
Affiliations
- Department of Public Health and Primary Care (Department)
Member
From1 Feb 2020 → Today - Department of Criminology, Criminal Law and Social Law (Department)
Member
From16 Sep 2019 → Today - Interfaculty Centre for Biomedical Ethics and Law (Research institute)
Member
From1 Sep 2011 → 31 Dec 2019
Projects
1 - 6 of 6
- Smart Glasses for coaching and guidance in primary careFrom1 Jun 2023 → TodayFunding: IWT / VLAIO - TETRA fund
- A PeRsOnalized Prevention roadmap for the future HEalThcareFrom1 Sep 2022 → TodayFunding: HORIZON.2.1 - Health
- Smartphone crowdsourced medical data for biomedical research:
Addressing the ethical, legal and health policy concernsFrom1 Jan 2021 → 31 Dec 2023Funding: FWO research project (including WEAVE projects)
- Testing & optimising a mobile app in Belgium for the prevention and management of COVID-19 infectionsFrom22 May 2020 → 31 May 2021Funding: FWO Special Call for Covid-19 research projects
- Transparency in processing health data for public and private funded scientific researchFrom7 Feb 2020 → TodayFunding: BOF - projects
- Digital innovation for man and societyFrom1 Jan 2020 → TodayFunding: BOF - research organisations
Publications
51 - 60 of 61
- Registered access : a ‘Triple-A’ approach(2016)
Authors: Stephanie O M Dyke, Emily Kirby, Mahsa Shabani, Adrian Thorogood, Kazuto Kato, Bartha M Knoppers
Pages: 1676 - 1680 - Who should have access to genomic data and how should they be held accountable? Perspectives of Data Access Committee members and experts(2016)
Authors: Mahsa Shabani, Adrian Thorogood, Pascal Borry
Pages: 1671 - 1675 - From the principles of genomic data sharing to the practices of data access committees(2015)
Authors: Mahsa Shabani, Bartha Maria Knoppers, Pascal Borry
Pages: 507 - 509 - Genomic databases, access review, and data access committees(2015)
Authors: Mahsa Shabani, Bartha Knoppers, Pascal Borry
Pages: 29 - 35 - Compendium of policy and ethical framework Umbilical Cord Blood (UCB) : banking, research and clinical Applications(2015)
Authors: Rosarie Isasi, Bartha Knoppers, Pascal Borry, Mahsa Shabani, Herman Nys
Number of pages: 1 - Challenges of web-based personal genomic data sharing(2015)
Authors: Mahsa Shabani, Pascal Borry
- Controlled access under review : improving the governance of genomic data access(2015)
Authors: Mahsa Shabani, Stephanie O. M. Dyke, Yann Joly, Pascal Borry
- Is there a right time to know? The right not to know and genetic testing in children(2014)
Authors: Pascal Borry, Mahsa Shabani, Heidi Howard
Pages: 19 - 27 - Attitudes of research participants and the general public towards genomic data sharing : a systematic literature review(2014)
Authors: Mahsa Shabani, Louize Bezuidenhout, Pascal Borry
Pages: 1053 - 1065 - A review of the key issues associated with the commercialization of biobanks(2014)
Authors: Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley, et al.
Pages: 94 - 110