Researcher
Mahsa Shabani
- Keywords (Ghent University):Privacy, bioethics, data protection law
- Disciplines (Ghent University):Information law, Bioethics
- Disciplines (KU Leuven):Evolutionary biology, General biology, Social medical sciences, Theory and methodology of philosophy, Philosophy, Ethics, Other philosophy, ethics and religious studies not elsewhere classified
- See also: Mahsa Shabani (KU Leuven)
Affiliations
- Department of Public Health and Primary Care (Department)
Member
From1 Feb 2020 → Today - Department of Criminology, Criminal Law and Social Law (Department)
Member
From16 Sep 2019 → Today - Interfaculty Centre for Biomedical Ethics and Law (Research institute)
Member
From1 Sep 2011 → 31 Dec 2019
Projects
1 - 6 of 6
- Smart Glasses for coaching and guidance in primary careFrom1 Jun 2023 → TodayFunding: IWT / VLAIO - TETRA fund
- A PeRsOnalized Prevention roadmap for the future HEalThcareFrom1 Sep 2022 → TodayFunding: HORIZON.2.1 - Health
- Smartphone crowdsourced medical data for biomedical research:
Addressing the ethical, legal and health policy concernsFrom1 Jan 2021 → 31 Dec 2023Funding: FWO research project (including WEAVE projects)
- Testing & optimising a mobile app in Belgium for the prevention and management of COVID-19 infectionsFrom22 May 2020 → 31 May 2021Funding: FWO Special Call for Covid-19 research projects
- Transparency in processing health data for public and private funded scientific researchFrom7 Feb 2020 → TodayFunding: BOF - projects
- Digital innovation for man and societyFrom1 Jan 2020 → TodayFunding: BOF - research organisations
Publications
41 - 50 of 61
- Forensic epigenetic age estimation and beyond : ethical and legal considerations(2018)
Authors: Mahsa Shabani, Pascal Borry, Inge Smeers, Bram Bekaert
Pages: 489 - 491 - The challenges of the expanded availability of genomic information : an agenda-setting paper(2018)
Authors: Pascal Borry, Heidi Beate Bentzen, Isabelle Budin-Ljøsne, Martina C. Cornel, Heidi Carmen Howard, Oliver Feeney, Leigh Jackson, Deborah Mascalzoni, Álvaro Mendes, Borut Peterlin, et al.
Pages: 103 - 116 - Registered access : authorizing data access(2018)
Authors: Stephanie O. M. Dyke, Mikael Linden, Ilkka Lappalainen, Jordi Rambla De Argila, Knox Carey, David Lloyd, J. Dylan Spalding, Moran N. Cabili, Giselle Kerry, Julia Foreman, et al.
Pages: 1721 - 1731 - Rules for processing genetic data for research purposes in view of the new EU General Data Protection Regulation(2017)
Authors: Mahsa Shabani, Pascal Borry
Pages: 149 - 156 - Raw genomic data : storage, access, and sharing(2017)
Authors: Mahsa Shabani, Danya Vears, Pascal Borry
Pages: 8 - 10 - Oversight of genomic data sharing : what roles for ethics and data access committees?(2017)
Authors: Mahsa Shabani, Edward Dove, Madeleine Murtagh, Bartha Knoppers, Pascal Borry
Pages: 469 - 474 - Genetic testing in Europe : an overview of the legal framework(2017)
Authors: Dominique Sprumont, Pascal Borry, Mahsa Shabani, André den Exter
Number of pages: 1 - Research ethics review for the use of anonymized samples and data : a systematic review of normative documents(2017)
Authors: Amicia Phillips, Pascal Borry, Mahsa Shabani
Pages: 483 - 496 - Research ethics : ethics review for international data-intensive research : ad hoc approaches mix and match existing components(2016)
Authors: E. S. Dove, D. Townend, E. M. Meslin, M. Bobrow, K. Littler, D. Nicol, J. de Vries, A. Junker, C. Garattini, J. Bovenberg, et al.
Pages: 1399 - 1400 - 'You want the right amount of oversight' : interviews with data access committee members and experts on genomic data access(2016)
Authors: Mahsa Shabani, Pascal Borry
Pages: 892 - 897