Researcher
Mahsa Shabani
- Keywords (Ghent University):Privacy, bioethics, data protection law
- Disciplines (Ghent University):Information law, Bioethics
- Disciplines (KU Leuven):Evolutionary biology, General biology, Social medical sciences, Theory and methodology of philosophy, Philosophy, Ethics, Other philosophy, ethics and religious studies not elsewhere classified
- See also: Mahsa Shabani (KU Leuven)
Affiliations
- Department of Public Health and Primary Care (Department)
Member
From1 Feb 2020 → Today - Department of Criminology, Criminal Law and Social Law (Department)
Member
From16 Sep 2019 → Today - Interfaculty Centre for Biomedical Ethics and Law (Research institute)
Member
From1 Sep 2011 → 31 Dec 2019
Projects
1 - 6 of 6
- Smart Glasses for coaching and guidance in primary careFrom1 Jun 2023 → TodayFunding: IWT / VLAIO - TETRA fund
- A PeRsOnalized Prevention roadmap for the future HEalThcareFrom1 Sep 2022 → TodayFunding: HORIZON.2.1 - Health
- Smartphone crowdsourced medical data for biomedical research:
Addressing the ethical, legal and health policy concernsFrom1 Jan 2021 → 31 Dec 2023Funding: FWO research project (including WEAVE projects)
- Testing & optimising a mobile app in Belgium for the prevention and management of COVID-19 infectionsFrom22 May 2020 → 31 May 2021Funding: FWO Special Call for Covid-19 research projects
- Transparency in processing health data for public and private funded scientific researchFrom7 Feb 2020 → TodayFunding: BOF - projects
- Digital innovation for man and societyFrom1 Jan 2020 → TodayFunding: BOF - research organisations
Publications
31 - 40 of 61
- Re‐identifiability of genomic data and the GDPR : assessing the re‐identifiability of genomic data in light of the EU general Data Protection Regulation(2019)
Authors: Mahsa Shabani, Luca Marelli
- Governance of collection, use and storage of RWD in the view of data protection concerns(2019)Volume: 29
Authors: Mahsa Shabani
Pages: 288 - 288 - The use of samples originating from doping control procedures for research purposes : a qualitative study(2019)
Authors: Thijs Devriendt, Amicia Phillips, Mahsa Shabani, Pascal Borry
Pages: 254 - 261 - Transparency and objectivity in governance of clinical trials data sharing : current practices and approaches(2019)
Authors: Mahsa Shabani, Mojisola Obasa
Pages: 547 - 551 - Are requirements to deposit data in research repositories compatible with the European Union's general data protection regulation?(2019)
Authors: Deborah Mascalzoni, Heidi Beate Bentzen, Isabelle Budin-Ljøsne, Lee Andrew Bygrave, Jessica Bell, Edward S. Dove, Christian Fuchsberger, Kristian Hveem, Michaela Th. Mayrhofer, Viviana Meraviglia, et al.
Pages: 332 - 335 - Consent insufficient for data release(2019)
Authors: Dianne Nicol, Lisa Eckstein, Heidi Beate Bentzen, Pascal Borry, Mike Burgess, Wylie Burke, Don Chalmers, Mildred Cho, Edward Dove, Stephanie Fullerton, et al.
Pages: 445 - 446 - DNA data marketplace : an analysis of the ethical concerns regarding the participation of the individuals(2019)
Authors: Eman Ahmed, Mahsa Shabani
- Blockchain-based platforms for genomic data sharing : a de-centralized approach in response to the governance problems?(2019)
Authors: Mahsa Shabani
Pages: 76 - 80 - Variant data sharing by clinical laboratories through public databases : consent, privacy and further contact for research policies(2018)
Authors: Mahsa Shabani, Stephanie O. M. Dyke, Luca Marelli, Pascal Borry
Pages: 1031 - 1037 - Umbilical cord blood banking, research and clinical applications : report and recommendations(2018)
Authors: Rosarie Isasi, Bartha Knoppers, Pascal Borry, Mahsa Shabani, Herman Nys