Researcher
Mahsa Shabani
- Keywords (Ghent University):Privacy, bioethics, data protection law
- Disciplines (Ghent University):Information law, Bioethics
- Disciplines (KU Leuven):Evolutionary biology, General biology, Social medical sciences, Theory and methodology of philosophy, Philosophy, Ethics, Other philosophy, ethics and religious studies not elsewhere classified
- See also: Mahsa Shabani (KU Leuven)
Affiliations
- Department of Public Health and Primary Care (Department)
Member
From1 Feb 2020 → Today - Department of Criminology, Criminal Law and Social Law (Department)
Member
From16 Sep 2019 → Today - Interfaculty Centre for Biomedical Ethics and Law (Research institute)
Member
From1 Sep 2011 → 31 Dec 2019
Projects
1 - 6 of 6
- Smart Glasses for coaching and guidance in primary careFrom1 Jun 2023 → TodayFunding: IWT / VLAIO - TETRA fund
- A PeRsOnalized Prevention roadmap for the future HEalThcareFrom1 Sep 2022 → TodayFunding: HORIZON.2.1 - Health
- Smartphone crowdsourced medical data for biomedical research:
Addressing the ethical, legal and health policy concernsFrom1 Jan 2021 → 31 Dec 2023Funding: FWO research project (including WEAVE projects)
- Testing & optimising a mobile app in Belgium for the prevention and management of COVID-19 infectionsFrom22 May 2020 → 31 May 2021Funding: FWO Special Call for Covid-19 research projects
- Transparency in processing health data for public and private funded scientific researchFrom7 Feb 2020 → TodayFunding: BOF - projects
- Digital innovation for man and societyFrom1 Jan 2020 → TodayFunding: BOF - research organisations
Publications
21 - 30 of 61
- The Data Governance Act and the EU's move towards facilitating data sharing(2021)
Authors: Mahsa Shabani
- The impact of the GDPR on the governance of biobank research(2021)Series: Law, Governance and Technology Series (LGTS)
Authors: Mahsa Shabani, Gauthier Chassang, Luca Marelli, Santa Slokenberga, Olga Tzortzatou, Jane Reichel
Pages: 45 - 60 - An agenda-setting paper on data sharing platforms : euCanSHare workshop(2021)
Authors: Thijs Devriendt, Clemens Ammann, Folkert W. Asselberghs, Alexander Bernier, Rodrigo Costas, Matthias G. Friedrich, Josep L. Gelpi, Marjo-Riitta Jarvelin, Kari Kuulasmaa, Karim Lekadir, et al.
- Implications of secondary findings in clinical context(2020)Series: Translational and Applied Genomics
Authors: Michael Morrison, Harriet Teare, Gabriella Bertier, James Buchanan, Yasmin Bylstra, Clara Gaff, Leigh Jackson, Kazuto Kato, Elke Kaufmann, Susan Kelly, et al.
Pages: 155 - 202 - Data sharing platforms and the academic evaluation system(2020)
Authors: Thijs Devriendt, Mahsa Shabani, Pascal Borry
- Genomic sequencing capacity, data retention, and personal access to raw data in Europe(2020)
Authors: Shaman Narayanasamy, Varvara Markina, Adrian Thorogood, Adriana Blazkova, Mahsa Shabani, Bartha M. Knoppers, Barbara Prainsack, Robert Koesters
- Juridisch onderzoek gegevensbeheer Zorginspectie(2020)
Authors: Lisse Van Acker, Tim Opgenhaffen, Eva Lievens, Johan Put, Mahsa Shabani
- Review of policies of companies and databases regarding access to customers' genealogy data for law enforcement purposes(2020)
Authors: Sevasti Skeva, Maarten H. D. Larmuseau, Mahsa Shabani
Pages: 141 - 153 - Reporting, recording, and communication of COVID-19 cases in workplace : data protection as a moving target(2020)
Authors: Mahsa Shabani, Tom Goffin, Heidi Mertes
- Model consent clauses for rare disease research(2019)
Authors: Minh Thu Nguyen, Jack Goldblatt, Rosario Isasi, Marlene Jagut, Anneliene Hechtelt Jonker, Petra Kautmann, Laetitia Ouillade, Fruszina Molnar-Gabor, Mahsa Shabani, Eric Sid, et al.