Researcher
Mahsa Shabani
- Keywords (Ghent University):Privacy, bioethics, data protection law
- Disciplines (Ghent University):Information law, Bioethics
- Disciplines (KU Leuven):Evolutionary biology , General biology, Social medical sciences, Theory and methodology of philosophy, Philosophy, Ethics, Other philosophy, ethics and religious studies not elsewhere classified
- See also: Mahsa Shabani (KU Leuven)
Affiliations
- Department of Public Health and Primary Care (Department)
Member
From1 Feb 2020 → Today - Department of Criminology, Criminal Law and Social Law (Department)
Member
From16 Sep 2019 → Today - Interfaculty Centre for Biomedical Ethics and Law (Research institute)
Member
From1 Sep 2011 → 31 Dec 2019
Projects
1 - 3 of 3
- Testing & optimising a mobile app in Belgium for the prevention and management of COVID-19 infectionsFrom22 May 2020 → 31 May 2021Funding: FWO Special Call for Covid-19 research projects
- Transparency in processing health data for public and private funded scientific researchFrom7 Feb 2020 → TodayFunding: BOF - projects
- Digital innovation for man and societyFrom1 Jan 2020 → TodayFunding: BOF - research organisations
Publications
1 - 10 of 51
- Will the European Health Data Space change data sharing rules?(2022)
Authors: Mahsa Shabani
Pages: 1357 - 1359 - Credit and recognition for contributions to data-sharing platforms among cohort holders and platform developers in Europe : interview study(2022)
Authors: Thijs Devriendt, Pascal Borry, Mahsa Shabani
- The impact of the GDPR on the governance of biobank research(2021)Series: Law, Governance and Technology Series (LGTS)
Authors: Mahsa Shabani, Gauthier Chassang, Luca Marelli, Santa Slokenberga, Olga Tzortzatou, Jane Reichel
Pages: 45 - 60 - The Data Governance Act and the EU's move towards facilitating data sharing(2021)
Authors: Mahsa Shabani
- Collection and sharing of genomic and health data for research purposes : going beyond data collection in traditional research settings(2021)
Authors: Mahsa Shabani
Pages: 251 - 260 - Public involvement in the governance of populationlevel biomedical research : unresolved questions and future directions(2021)
Authors: Sonja Erikainen, Phoebe Friesen, Leah Rand, Karin Jongsma, Michael Dunn, Annie Sorbie, Matthew McCoy, Jessica Bell, Michael Burgess, Haidan Chen, et al.
Pages: 522 - 525 - An agenda-setting paper on data sharing platforms : euCanSHare workshop(2021)
Authors: Thijs Devriendt, Clemens Ammann, Folkert W. Asselberghs, Alexander Bernier, Rodrigo Costas, Matthias G. Friedrich, Josep L. Gelpi, Marjo-Riitta Jarvelin, Kari Kuulasmaa, Karim Lekadir, et al.
- Editorial: Personal genomes : accessing, sharing, and interpretation(2021)
Authors: Manuel Corpas, Stephan Beck, Gustavo Glusman, Mahsa Shabani
- Ethics review of big data research : what should stay and what should be reformed?(2021)
Authors: Agata Ferretti, Marcello Ienca, Mark Sheehan, Alessandro Blasimme, Edward S. Dove, Bobbie Farsides, Phoebe Friesen, Jeff Kahn, Walter Karlen, Peter Kleist, et al.
- Toward better governance of human genomic data(2021)
Authors: Kieran C. OU+2019Doherty, Mahsa Shabani, Edward S. Dove, Heidi Beate Bentzen, Pascal Borry, Michael M. Burgess, Don Chalmers, Jantina De Vries, Lisa Eckstein, Stephanie M. Fullerton, et al.
Pages: 2 - 8