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Project
What are the unmet care and support needs of children living with a parent diagnosed with advanced cancer: a mixed methods study using qualitative interviews, a quantitative survey and big data (FWOTM1006)
A significant part of the people diagnosed with incurable cancer,
have young children. The last couple of years, attention for the
quality of the care for these patients is clearly increasing. A positive
tendency that, more recently, also applies to their caregivers. As of
late, there is a growing awareness that due to the increasing group of
people with problems, support outside of the professional
environment is needed.
The wider social circle can play its part, by
granting informal support to the families that are involved. The
patients’ children, however, seem to have specific problems that can
show up until after the decease. However, high quality research on
the care needs of these children is scarce. The same goes for
efficient care interventions. That is why in this project we will develop
a tool that can measure the care needs as well as their formal care
and the informal support, followed by a multicenter questionnaire
study (in four hospitals) among children of parents with advanced
cancer diagnosis, and a study on population level, using
administrative data that compare the health care for these children
with the care that is given to children of parents who don’t have
advanced cancer. By doing this, we can obtain insights into the care
needs, the formal care and informal support, and also about the
existing risk groups. This knowledge can help us to develop
interventions and tools that tackle the unmet care needs of this
somewhat neglected group..
have young children. The last couple of years, attention for the
quality of the care for these patients is clearly increasing. A positive
tendency that, more recently, also applies to their caregivers. As of
late, there is a growing awareness that due to the increasing group of
people with problems, support outside of the professional
environment is needed.
The wider social circle can play its part, by
granting informal support to the families that are involved. The
patients’ children, however, seem to have specific problems that can
show up until after the decease. However, high quality research on
the care needs of these children is scarce. The same goes for
efficient care interventions. That is why in this project we will develop
a tool that can measure the care needs as well as their formal care
and the informal support, followed by a multicenter questionnaire
study (in four hospitals) among children of parents with advanced
cancer diagnosis, and a study on population level, using
administrative data that compare the health care for these children
with the care that is given to children of parents who don’t have
advanced cancer. By doing this, we can obtain insights into the care
needs, the formal care and informal support, and also about the
existing risk groups. This knowledge can help us to develop
interventions and tools that tackle the unmet care needs of this
somewhat neglected group..
Date:1 Oct 2020 → Today
Keywords:unmet care needs, palliative care, children affected by parental advanced cancer
Disciplines:Public health sciences not elsewhere classified, Social medical sciences not elsewhere classified